He is doing great on his feeds, he is taking an hour's worth at a feeding. They are going to try to increase that. The EEG did not show seizure activity in the brain, so they will soon stop the Phenibarb. The bad news... He is probably blind. His eye structures are fine, but the part of the brain that processes what he sees is not working. There is no surgery that can fix it. Please continue praying for us and the challenges we face ahead.
Teresa Ryan
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flybyhugging!
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